10 Camping Tips and Tricks

10 Camping Tips and Tricks

For both CFers and Non-CFers If anyone knows me, they will know I love camping.  Growing up we used to go camping as a family and it was so much fun working as a team to put our massive tent up!  Although not so much when it was windy and rainy…but I’d let...
How I Feel About MK17 Music In The Park

How I Feel About MK17 Music In The Park

I had to sit down and write this. My heart is exploding…  Yesterday the music festival called ‘MK17 Music In The Park’ was put on in our village. And it’s all in aid of the Cystic Fibrosis Trust. At the beginning of this year I finally started to come to terms with...
The History Behind Cystic Fibrosis

The History Behind Cystic Fibrosis

How was it discovered? In my mind, Cystic Fibrosis has been going on for 40, maybe 50 years tops. But doing the research into it is rather interesting. CF was apparently mentioned in European folklore in the Middle Ages… for anyone who doesn’t know how long ago that...
From Paediatrics To Adult Care

From Paediatrics To Adult Care

It’s a big step, going from one to the other. But for me it wasn’t the smooth transition I’d hoped for. We had an appointment at the CF Adult clinic, I presumed just to get a taster of how things happened and worked. I presumed I would go back to my paediatric team at...
My First Hospital Admission

My First Hospital Admission

I was nine. It was December 2003, and I had fallen ill with a cold. When nothing improved, I was taken to the doctors just before Christmas and they gave me some medication. But unfortunately it didn’t work. I distinctly remember being at my Aunty Cath’s house for...
What Is A Reactive Hypo?

What Is A Reactive Hypo?

So we already know the pancreas is a bit dodgy in most CFers. But over the years, I’ve developed something called Hypoglycaemia. There are two types of hypos you can get, the first is from Diabetes where I believe some medication can lower the blood sugar below...